Skip to main navigation menu Skip to main content Skip to site footer

Educational Pathway Disruptions Among Autistic Students: A Scoping Review of School Changes, Exclusions, and School Non-Attendance

DOI:

https://doi.org/10.5282/breakingbarriers/17

Abstract

School transitions, exclusions, and periods of school non-attendance occur at disproportionately high rates among autistic students and have lasting effects on their educational biographies. Existing research has largely examined these phenomena in isolation, rarely analyzing them in their temporal relationship as biographical trajectories. A combined perspective is necessary to reveal cumulative stress dynamics, biographical turning points, and systemic patterns that remain hidden when each phenomenon is studied separately.

This scoping review aims to map the international empirical literature on the educational biographies of autistic students in primary and secondary schooling, and to identify recurring trajectory-related patterns, turning points, and factors influencing continuity and discontinuity. The literature search was conducted across four databases (Scopus, Web of Science, PsycINFO, PubMed) between October 2024 and June 2025. Following title, abstract, and full-text screening, 34 empirical studies were included and analyzed using narrative-thematic qualitative content analysis.

The educational biographies of autistic students are predominantly non-linear and characterized by cumulative stress dynamics. School transitions and exclusions frequently function as turning points within longer-term escalation processes, arising from repeated mismatches between individual needs and school contextual conditions. Three dimensions of influence are reconstructed: structural conditions (e.g., institutional routines, resources, autism competence), social contexts (e.g., peer relationships, teacher-student relationships), and individual stress factors.

Educational discontinuities among autistic students cannot be understood as isolated events, but as relational and processual trajectories that require integrated analysis. The review contributes to conceptually consolidating a fragmented field of research and identifies directions for future longitudinal work on educational participation and exclusion.

Keywords

Autism, Educational biographies, Structural barriers, Discontinuities, Inclusive education

PDF (German)

Author Biography

Melika Ahmetovic

Department Education and Rehabilitation

Chair: Behavioural disorders, Autism and inclusive Education

Coordinator of Additional Teacher Training Program Autism Spectrum

Assistant Lecturer and Researcher

PhD Candidate

Anett Platte

University Regensburg, Visiting Professor

University of Leipzig, Assitant lecturer and Researcher

Simon Wallace

School of Education

Autism Center of Education and Research

PhD

Emad Al-Rozzi

Faculty of Education and International Studies
– Department of Early Childhood Education
– Head of Studies – Area of Responsibility 2


References

  1. Adams, D., Stainer, M., Simpson, K., Paynter, J., & Westerveld, M. (2025). Profiles and longitudinal growth trajectories of teacher-rated academic skills and enablers in autistic children and adolescents. Journal of Autism and Developmental Disorders, 55(1), 267-283.
  2. Ahmetovic, M. & Kapp, S. (2025). Autismus und herausfordernde Umgebungen: Auf dem Weg zu einer stärkenorientierten Ethik des Flourishing. In Enzyklopädie Erziehungswissenschaft Online (S. 1–9). Beltz Juventa.
  3. Alheit, P., & Dausien, B. (2002). Bildungsprozesse über die Lebensspanne und lebenslanges Lernen. In R. Tippelt (Hrsg.), Handbuch Bildungsforschung (S. 565–587). Leske & Buddrich.
  4. Ballantyne, C., Wilson, C., Toye, M. K., & Gillespie-Smith, K. (2024). Knowledge and barriers to inclusion of ASC pupils in Scottish mainstream schools: A mixed methods approach. International Journal of Inclusive Education, 28(9), 1838–1857. https://doi.org/10.1080/13603116.2022.2036829
  5. Bower, C. (2019). “Um, I was getting bullied at school because I didn’t believe in god”: One family’s experience of autism, school and home education. International Journal of Inclusive Education, 25(8), 914–927. https://doi.org/10.1080/13603116.2019.1588926
  6. Brede, J., Remington, A., Kenny, L., Warren, K., & Pellicano, E. (2017). Excluded from school: Autistic students’ experiences of school exclusion and subsequent re-integration into school. Autism & Developmental Language Impairments, 2, 1–20. https://doi.org/10.1177/2396941517737511
  7. Brouwer-Borghuis, M. L., Heyne, D., Sauter, F. M., & Scholte, R. H. J. (2019). The Link: An alternative educational program in the Netherlands to reengage school-refusing adolescents with schooling. Cognitive and Behavioral Practice, 26(1), 75–91. https://doi.org/10.1016/j.cbpra.2018.08.001
  8. Bury, S. M., Jellett, R., Spoor, J. R., & Hedley, D. (2020). „It defines who I am“ or „It‘s something I have“: What language do [autistic] Australian adults [on the autism spectrum] prefer? Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-020-04425-3
  9. Caballero, C. M. (2024). From specialised classrooms to mainstream classrooms: A study on the inclusion of students with special educational needs from the voices of their mainstream peers. Education Sciences, 14(5), Article 452. https://doi.org/10.3390/educsci14050452
  10. Connolly, S. E., Constable, H. L., & Mullally, S. L. (2023). School distress and the school attendance crisis: A story dominated by neurodivergence and unmet need. Frontiers in Psychiatry, 14, Article 1237052. https://doi.org/10.3389/fpsyt.2023.1237052
  11. Costley, D., Emerson, A., Ropar, D., & Sheppard, E. (2021). The anxiety caused by secondary schools for autistic adolescents: In their own words. Education Sciences, 11(11), Article 726. https://doi.org/10.3390/educsci11110726
  12. Croydon, A., Remington, A., Kenny, L., & Pellicano, E. (2019). “This is what we’ve always wanted”: Perspectives on young autistic people’s transition from special school to mainstream satellite classes. Autism & Developmental Language Impairments, 4. Advance online publication. https://doi.org/10.1177/2396941519886475
  13. Cuconato, M., & Walther, A. (2015). “Doing transitions” in education. International Journal of Qualitative Studies in Education, 28(3), 283–296.
  14. Dwyer, P., Nosova, E., Kermond, C., & Leadbitter, K. (2026). Inclusion, but not necessarily integration: Centring student perspectives and needs in education. Autism, 13623613261425303.
  15. Ecclestone, K., Biesta, G., & Hughes, M. (Hrsg.). (2010). Transitions and learning through the lifecourse. Routledge.
  16. Goodall, C. (2018). “I felt closed in and like I couldn’t breathe”: A qualitative study exploring the mainstream educational experiences of autistic young people. Autism & Developmental Language Impairments, 3, 1–16. https://doi.org/10.1177/2396941518804407
  17. Gray, L., Hill, V., & Pellicano, E. (2023). “He’s shouting so loud but nobody’s hearing him”: A multi-informant study of autistic pupils’ experiences of school non-attendance and exclusion. Autism & Developmental Language Impairments, 8, 1–17. https://doi.org/10.1177/23969415231207816
  18. Guldberg, K., Wallace, S., Bradley, R., Perepa, P., Ellis, L., & MacLeod, A. (2021). Investigation of the causes and implications of exclusion for autistic children and young people. ACER. University of Birmingham
  19. Hatton, C. (2018). School absences and exclusions experienced by children with learning disabilities and autistic children in 2016/17 in England. Tizard Learning Disability Review, 23(4), 207–212. https://doi.org/10.1108/TLDR-07-2018-0021
  20. Heyne, D., Gren-Landell, M., Melvin, G., & Gentle-Genitty, C. (2019). Differentiation between school attendance problems: Why and how? Cognitive and Behavioral Practice, 26(1), 8–34.
  21. Hodges, A., Cordier, R., Joosten, A., & Bourke-Taylor, H. (2021). Expert consensus on the development of a school-based intervention to improve the school participation and connectedness of elementary students with ASD: A Delphi study. Focus on Autism and Other Developmental Disabilities, 37(1), 13–23. https://doi.org/10.1177/10883576211030483
  22. Holmes, S. C. (2024). Inclusion, autism spectrum, students’ experiences. International Journal of Developmental Disabilities, 70(1), 59-73.
  23. Holt, L., Lea, J., & Bowlby, S. (2012). Special units for young people on the autistic spectrum in mainstream schools: Sites of normalisation, abnormalisation, inclusion, and exclusion. Environment and Planning A: Economy and Space, 44(9), 2191–2206. https://doi.org/10.1068/a44456
  24. Horgan, F., Kenny, N., & Flynn, P. (2023). A systematic review of the experiences of autistic young people enrolled in mainstream second-level (post-primary) schools. Autism, 27(2), 526-538. https://doi.org/10.1177/13623613221105089
  25. Kapp, S. K. (2023). Profound concerns about “profound autism”: Dangers of severity scales and functioning labels for support needs. Education Sciences, 13(2), 106.
  26. Kapp, S. K., Gillespie-Lynch, K., Sherman, L. E., & Hutman, T. (2013). Deficit, difference, or both? Autism and neurodiversity. Developmental Psychology, 49(1), 59–71.
  27. Keating, C. T., Hickman, L., Leung, J., Monk, R., Montgomery, A., Heath, H., & Sowden, S. (2023). Autism-related language preferences of English-speaking individuals across the globe: A mixed methods investigation. Autism Research, 16(2), 406–428. https://doi.org/10.1002/aur.2864
  28. Kristof-Brown, A. L., Zimmerman, R. D., & Johnson, E. C. (2005). Consequences of individuals’ fit at work: A meta-analysis of person–job, person–organization, person–group, and person–supervisor fit. Personnel Psychology, 58(2), 281–342.
  29. Lai, M.-C., Anagnostou, E., Wiznitzer, M., Allison, C., & Baron-Cohen, S. (2020). Evidence-based support for autistic people across the lifespan: Maximising potential, minimising barriers, and optimising the person–environment fit. The Lancet Neurology, 19(5), 434–451.
  30. de Leeuw, R. R., de Boer, A. A., Beckmann, E. J., van Exel, J., & Minnaert, A. E. M. G. (2019). Young children’s perspectives on resolving social exclusion within inclusive classrooms. International Journal of Educational Research, 98, 324–335. https://doi.org/10.1016/j.ijer.2019.09.009
  31. Laxman, D. J., Taylor, J. L., DaWalt, L. S., Greenberg, J. S. & Mailick, M. R. (2019). Loss in services precedes high school exit for teens with autism spectrum disorder: A longitudinal study. Autism Research, 12: 911-921. https://doi.org/10.1002/aur.2113
  32. Lester, J. N., & O‘Reilly, M. (2021). The social, cultural, and political discourses of autism (Vol. 9). Springer Nature.
  33. Levac, D., Colquhoun, H., & O’Brien, K. K. (2010). Scoping studies: Advancing the methodology. Implementation Science, 5(1), Article 69.
  34. Lilley, R. (2014). Trading places: Autism inclusion disorder and school change. International Journal of Inclusive Education, 19(4), 379–396. https://doi.org/10.1080/13603116.2014.935813
  35. Mailick, M., Bennett, T., DaWalt, L. S., Durkin, M. S., Forbes, G., Howlin, P., ... & Halladay, A. (2025). Expanding Research on Contextual Factors in Autism Research: What Took Us So Long?. Autism research, 18(4), 710-716.
  36. Majoko, T. (2016). Inclusion of children with autism spectrum disorders: Listening and hearing to voices from the grassroots. Journal of Autism and Developmental Disorders, 46(4), 1429–1440. https://doi.org/10.1007/s10803-015-2685-1
  37. Makin, C., Hill, V., & Pellicano, E. (2017). The primary-to-secondary school transition for children on the autism spectrum: A multi-informant mixed-methods study. Autism & Developmental Language Impairments, 2. https://doi.org/10.1177/2396941516684834
  38. Martin-Denham, S. (2021). Alternatives to school exclusion: Interviews with head teachers in England. Emotional and Behavioural Difficulties, 26(4), 375–393. https://doi.org/10.1080/13632752.2021.1983326
  39. Martin-Denham, S. (2022). Marginalisation, autism and school exclusion: Caregivers’ perspectives. Support for Learning, 37(1), 108–143. https://doi.org/10.1111/1467-9604.12398
  40. Martinez, C., Davidoff, A., & Briceño, R. (2023). Early educational trajectories of children with autism spectrum disorder in Chile: Challenges and facilitators. Frontiers in Education, 8, Article 1259428. https://doi.org/10.3389/feduc.2023.1259428
  41. McKinlay, J., Wilson, C., Hendry, G., & Ballantyne, C. (2022). “It feels like sending your children into the lions’ den”: A qualitative investigation into parental attitudes towards ASD inclusion, and the impact of mainstream education on their child. Research in Developmental Disabilities, 120, Article 104128. https://doi.org/10.1016/j.ridd.2021.104128
  42. Mitchelson, H., Adams, D., & Simpson, K. (2024). To move, or not to move schools?: Decisions made by parents when considering the well-being of their autistic child. International Journal of Inclusive Education. Advance online publication. https://doi.org/10.1080/13603116.2024.2369265
  43. Mitchelson, H., Simpson, K., & Adams, D. (2021). Should we stay or should we go? Parent experiences of moving or considering moving their autistic child between mainstream schools. International Journal of Inclusive Education, 28(6), 839–856. https://doi.org/10.1080/13603116.2021.1968515
  44. Milton, D. E. M. (2012). On the ontological status of autism: The “double empathy problem”. Disability & Society, 27(6), 883–887.
  45. Milton, D., Ridout, S., Murray, D., Martin, N., & Mills, R. (Hrsg.). (2020). The neurodiversity reader: Exploring concepts, lived experiences and implications for practice. Pavilion Publishing and Media.
  46. Mottron, L. & Gagnon, D. (2024). Debate: How far can we modify the expression of autism by modifying the environment?. Child and Adolescent Mental Health, 29: 101-103. https://doi.org/10.1111/camh.12686
  47. Munkhaugen, E. K., Gjevik, E., Pripp, A. H., Sponheim, E., & Diseth, T. H. (2017). School refusal behaviour: Are children and adolescents with autism spectrum disorder at a higher risk? Research in Autism Spectrum Disorders, 41, 31–38. https://doi.org/10.1016/j.rasd.2017.07.001
  48. Nistor, G., & Dumitru, C. L. (2021). Preventing school exclusion of students with autism spectrum disorder (ASD) through reducing discrimination: Sustainable integration through contact-based education sessions. Sustainability, 13(13), Article 7056. https://doi.org/10.3390/su13137056
  49. Nordin, V., Palmgren, M., Lindbladh, A., Bölte, S., & Jonsson, U. (2024). School absenteeism in autistic children and adolescents: A scoping review. Autism, 28(7), 1622–1637.
  50. Ochi, M., Kawabe, K., Ochi, S., Miyama, T., Horiuchi, F., & Ueno, S. (2020). School refusal and bullying in children with autism spectrum disorder. Child and Adolescent Psychiatry and Mental Health, 14(1), Article 17. https://doi.org/10.1186/s13034-020-00325-7
  51. O’Hagan, S., Bond, C., & Hebron, J. (2024). Autistic girls and emotionally based school avoidance: Supportive factors for successful re-engagement in mainstream high school. International Journal of Inclusive Education, 28(9), 1919–1935. https://doi.org/10.1080/13603116.2022.2049378
  52. Parker, C., Paget, A., Ford, T., & Gwernan-Jones, R. (2016). “He was excluded for the kind of behaviour that we thought he needed support with…”: A qualitative analysis of the experiences and perspectives of parents whose children have been excluded from school. Emotional and Behavioural Difficulties, 21(1), 133–151. https://doi.org/10.1080/13632752.2015.1120070
  53. Pellicano, L., Bölte, S., & Stahmer, A. (2018). The current illusion of educational inclusion. Autism, 22(4), 386–387.
  54. Sasso, I., & Sansour, T. (2024). Risk and influencing factors for school absenteeism among students on the autism spectrum: A systematic review. Review Journal of Autism and Developmental Disorders, 1–14.
  55. Schneider, M., Fong, V. C., & McLaughlin, J. (2025). “Being Integrated Does Not Mean Being Included”: What Factors Contribute to School Exclusion for Autistic Children?. Autism Research, 18(9), 1851-1860.
  56. Schuck, R. K., Chetcuti, L., Dwyer, P., Milosavljevic, K., Bury, S. M., Hedley, D., Begeer, S., Vivanti, G., & Uljarevic, M. (2025). Preferences for identity-first and person-first language: A systematic review of research with autistic adults/adults with autism. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-025-07174-3
  57. Slee, R. (2011). The irregular school: Exclusion, schooling and inclusive education. Routledge.
  58. Sproston, K., Sedgewick, F., & Crane, L. (2017). Autistic girls and school exclusion: Perspectives of students and their parents. Autism & Developmental Language Impairments, 2. https://doi.org/10.1177/2396941517706172
  59. Sweeney, E., & Fitzgerald, J. (2023). Supporting autistic pupils in primary schools in Ireland: Are autism special classes a model of inclusion or isolation? Disabilities, 3(3), 379–395. https://doi.org/10.3390/disabilities3030025
  60. Taylor, S. A., Phillips, K. J., & Gertzog, M. G. (2018). Use of synthesized analysis and informed treatment to promote school reintegration. Behavioral Interventions, 33(4), 364–379. https://doi.org/10.1002/bin.1640
  61. Tomlinson, C., Bond, C., & Hebron, J. (2021). The mainstream school experiences of adolescent autistic girls. European Journal of Special Needs Education, 37(2), 323–339. https://doi.org/10.1080/08856257.2021.1878657
  62. Totsika, V., Hastings, R. P., Dutton, Y., Worsley, A., Melvin, G., Gray, K., et al. (2020). Types and correlates of school non-attendance in students with autism spectrum disorders. Autism, 24(7), 1639–1649. https://doi.org/10.1177/1362361320916967
  63. Tricco, A. C., Lillie, E., Zarin, W., O’Brien, K. K., Colquhoun, H., Levac, D., et al. (2018). PRISMA extension for scoping reviews (PRISMA-ScR): Checklist and explanation. Annals of Internal Medicine, 169(7), 467–473.
  64. van den Helder, C., Plak, R., Meeter, M., & Begeer, S. (2024). Longitudinal transition between regular and special education in autistic children: Predictors and policy effects. Journal of Autism and Developmental Disorders. Advance online publication. https://doi.org/10.1007/s10803-024-06369-4
  65. Videla, R., Parada, F. J., Aros, M. B., Ramírez, P., Sarzosa, A., Jorquera, D., et al. (2025). Breaking barriers in education: Leveraging 3E approach and technology to foster inclusion for SEN students. Frontiers in Education, 10, Article 1554314.
  66. Zablotsky, B., Bradshaw, C. P., Anderson, C. M., & Law, P. (2014). Risk factors for bullying among children with autism spectrum disorders. Autism, 18(4), 419–427. https://doi.org/10.1177/1362361313477920
  67. Zacharia, T., & Pearlman-Avnion, S. (2026). School Refusal in Autism: Causes, Consequences, and Intervention Strategies. In Collaborative Care and Partnerships in Autism Diagnosis and Treatment: Therapists, Parents, Children (pp. 71-81). Springer Nature Switzerland.

Downloads

Download data is not yet available.